My Daughter Has Schimke Immuno-osseous Dysplasia (SIOD)
Since Mother’s Day 2008, I’ve stood in my kitchen prepping evening meds, surrounded by syringes, seizure medications and predigested baby formula for Emily, my young adult daughter. One August night, she maneuvers over, using her hot pink crutches to check on her evening order of chicken bouillon, her go-to menu choice. Emily’s medications and chemo … Read more
