CF Trust members and the Daily Express at Downing Street (Image: handout) An alarming 43 per cent the UK’s cystic fibrosis sufferers worry about their future every day – as they shoulder a daily physical, mental and financial burden, a new report reveals. CF is a life-limiting genetic condition that slowly clogs the lungs with … Read more
Devoted dad Bob Clarke is cycling 530 kilometres from Vietnam’s Ho Chi Minh To Angkor Wat in Cambodia … to save cystic fibrosis patients like his treasured daughter. And CF-sufferer Sophie Clarke, 29, has told the Daily Express how her dad is a “hero” after raising £55,000 over the years for the Cystic Fibrosis Trust … Read more
A five year-old with cystic fibrosis is finally “living his childhood” as his health soars … thanks to a wonder drug the Daily Express helped fight for. Last year anxious mum Chloe Browne, 30, was pleading for Kaftrio to help her sickly son Jesse, who was constantly in and out of hospital with chest infections … Read more
Chancellor Jeremy Hunt has been urged to give a compassionate Spring Budget – by finally granting free prescriptions to sufferers with rare genetic diseases like cystic fibrosis. A year ago the Daily Express and the Cystic Fibrosis Trust handed in a petition at 10 Downing Street, asking the Government to finally make CF sufferers exempt … Read more
The Call The Midwife star has the gene that causes the lung condition and has a niece and great nephew with CF. Kaftrio has been called a near-cure for many sufferers and it has transformed lives. But National Institute for Health and Care Excellence advisers have said it is not cost-effective to prescribe it on … Read more
An app using artificial intelligence could be “revolutionary” for patients with chronic lung conditions such as cystic fibrosis. Experts claim the technology is able to predict when a patient will fall ill up to 10 days in advance. It is hoped Breathe RM will let patients with CF be monitored remotely, removing the need for … Read more
