Celine Dion’s performing career remains on hold as she continues to battle the rare neurological disorder stiff person syndrome.
The singer has decided to chronicle her health journey in a new documentary called I Am: Celine Dion, and remains optimistic that one day she will be able to take the stage again.
WATCH THE VIDEO ABOVE: Celine Dion’s health battle.
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Posting to Instagram, Dion shared a powerful message of hope as she announced news of the documentary.
“This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me,” she wrote.
“As the road to resuming my performing career continues, I have realised how much I have missed it, of being able to see my fans.”
She added that she wanted to “document” this part of her life through her documentary, “to raise awareness of this little-known condition, to help others who share this diagnosis.”
Dion announced in December 2022 that she was taking time off from professional commitments to focus on her health after revealing her stiff person syndrome diagnosis.
At the time, she said the condition did not allow her “to sing the way I’m used to”.
While she released new music and appeared in a film, Love Again, opposite Priyanka Chopra and Sam Heughan last year, a source close to Dion told CNN in late May that she “will likely never tour again.”
Stiff person syndrome is “a rare, progressive syndrome that affects the nervous system, specifically the brain and spinal cord,” according to the National Institute of Neurological Disorders and Stroke.
“She’s doing everything to recover,” Dion’s older sister Claudette told Hello! Canada in September.
“She’s a strong woman.”
According to an official synopsis, I Am: Celine Dion will give viewers an intimate look inside her life “as she reveals her battle with stiff person syndrome (SPS) and the lengths she has gone to continue performing for her beloved and loyal fans”.
Capturing over a year’s worth of Dion’s life, including “never-before-seen” private moments, the film will showcase the legendary singer navigating “her journey toward living an open and authentic life amidst illness”.
Fans were excited to hear about the new documentary.
“I love you Celine Dion, you are a huge inspiration to me,” one fan wrote.
“This is great news,” said another.
“I wish you all happiness and health.”
“Sending you a lot of love ❤️,” added a third.
“We miss your talent, your voice, your music, your smile.
“Hopefully we can see you smile again.”
I Am: Celine Dion will be directed by Oscar-winning director Irene Taylor and will stream on Prime Video, according to the news release.
– With CNN
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